Depression

Where I Live Now

Dearest of dear ones,

At long last, the promised update! Cutting right to the chase… I now live in Portland!

Some of you may be thinking, “Yeah, I know. You’ve been talking about this for years.” I talked a big game, folks, but I was never actually sure it would happen.

It’s been a little more than a week since Portland-Sara morphed from an idea into a reality, so thinking about it still gives me a swoop in the stomach and a tingle in the neck. This is not bad or good; it’s change. It’s a decision made. 

This year has been heavy with decisions, heavy with change. 

Heavy with miles traveled (over 7,000), with months lacking a proper job (6), with states traversed (17), with moments of heart-stopping uncertainty (lots), and of pure, glistening joy (countless). 

The first half of the year was so heavy I didn’t know how I’d bear it. There were times (days, weeks, months) when crying seemed my main occupation, when I could not fathom moving through the next day.  

The second half of the year found me the lightest I’ve ever been. The most grateful. The most awestruck. The most surrendered.

2017: a year of metaphorical and literal journey.  

Mid-December 2016, I was sobbing in my bedroom, yelling at God, “Why won’t you help me?!” This was a low point. Following my cancer treatment, I had rediscovered Spirit, embraced Presence, found a church I loved. (The Gathering in St. Louis, I don’t have enough words to express…) I was nourished. Then, with all of those things very much in my grasp, anxiety and darkness ate up the light. A dark night of the soul is what they call it. I managed to maintain a somewhat normal exterior, but the darkness was so deep, you guys, so why-am-I-on-this-earth-anymore deep. But that’s a story for another time. 

Back to how I ended up in Portland.

In November 2016, two years post-treatment, when I’d expected to have a clear CT scan, be named officially cancer-free and ready to move on with whatever would come next, instead the scan was ambiguous. Some tiny thing that hadn’t been evident before had appeared; and there was the lingering bronchitis, the recurring pain in my ribs. Just before Thanksgiving, following a surreally crazy test involving a nearly empty room in the deepest basement of the cancer center — Nuclear Medicine — and a kind, careful nurse injecting a radioactive substance from a small metal vial into a vein in the delicate gooseflesh of my inner elbow, the potentiality that my cancer had spread to bone was dispensed with. But still, there would be three months more waiting to see if the new spot on the scan was Something, or just a glitch. (To save you the stress I endured, it was apparently a glitch. Huzzah!) But, there I was just a tad over a year ago, yelling at the Universe for help.

Two days after that December night of forsaken-feeling anger, I was given 30 days to move out of my apartment, where I’d lived for nearly six years. 

Less than two hours after that, in a casual conversation, an angel of a friend offered me a place to stay for a couple of months, just to get me through my next scan. I ended up living there for six months — a safe, quiet place with dogs to love, and calm, solid support close at hand. The friend wouldn’t let me pay rent.

I guess Providence had heard my shouts.

That friend’s generosity allowed me to save money for a move to Portland where my biggest family cluster lives. But I was never sure the move was right. I was frozen. I was crying. I was saving up. For something.

Another tearful, prayerful night, it became clear that I needed three things: quiet, family, time. Now, to make these things happen…

In February, I got the all-clear from my doctor. “Sara, it’s time to go live your life now.”

In April, I hit a new low and, with a lot of help, got a handle on my depression. 

In May, I gave notice on the most lucrative job I’ve ever had, working for a boss and with a team I respected immensely.

In July, I worked my last day at UMSL, repacked my 10 x 10 storage unit, filled my car with what I thought I’d need for up to six months (the ridiculous-long estimate; I expected to be on the road only through October at the very latest), said goodbye to my St. Louis beloveds, and started driving.

I promised many of you updates along the way and I did manage to post some pictures and captions, but the longer I waited to write to you, the more experiences built up, and the harder it seemed to tell all the stories. So, finally here are some details. I hope once I get caught up, I’ll be better at staying in touch!

July/August — Nearly six weeks in Arlington, VA with my brother, Jason, sister-in-law, Susan, and brand new nephew, James. So many beautiful, home-cooked meals; being part of a family, baby-duty (wonderful baby-duty!) and all; regular writing dates with my brother (who happens also to be working on a book manuscript); getting to know my sister-in-law, becoming true friends; a magical week on the beach in North Carolina’s Outer Banks, swimming in the ocean; so much reading. I never wanted to leave.

August — Back to St. Louis for quarterly medical tests (all clear); reconnecting with people I love love love; catching up on last to-do’s before heading west.

September — Chicago for several days with my dear, old friend Sarah (and her Brian and family) in her new city. Biking on the lake, museums, food, long walks and lingering conversation — some of my very favorite things. Ann Arbor to visit Ellie and Dave, two of the kindest people I know; welcome like welcome was born to be. Detroit to mourn my darling Auntie Cathy with my uncle and grandmother. Back to Chicago with Sarah and clan for one restorative night and morning before pressing on.

September/October/ November— Denver/Boulder. The sunlight! So much connection with family. Long conversations and walks with my Auntie Mia, getting to know the daily life of my cousins. Stepping into a family unit ready for me to join right in. Cooking, relaxing, reading; long trips to libraries and bookstores; mornings spent reading, afternoons spent walking; seeing my grandmother almost every day, joining her for seven Fridays of her ladies’ prayer group. When I arrived in Denver, I thought I’d stay a week or two; I finally packed up and left after eight. Good God, this time was a gift. A pearl of hope, clarity, and intention growing layer by layer by layer.

October also saw a quick side trip from Denver to Tulsa to reconnect with home. With my beloved high school best friend, Tara, I saw Ryan Adams at the Cain’s Ballroom; reconnected with Wendy and Johnny, Nate, Shane, my brother Adam and his wife, Gina; sat quietly at my mom’s grave; and then visited Lynette, a librarian I worked with for one year, nearly twenty years ago and whose voice stayed with me longer than she’d ever imagined.

November/December — I planned to go through California after Colorado — LA, San Clemente, Oakland, San Francisco — but was called to Portland early to help out with a family injury. Not the injury, but the call to Portland was right on time. I was ready to settle for a while — a while meaning through New Year’s. By this point, I wasn’t sure Portland was for me. I thought I’d go back to Arlington/D.C. to live with my brother and his charmed little family or, more likely, to Denver, land of the shining-est sun where my spirit glowed so bright. But then, following a hike during a long-anticipated side trip to Vashon Island in the Puget Sound to visit one of my dearest college friends, Leila, and her partner, Ellen… click, click, click, like the perfect tumbling of a clock’s gears, the Pacific Northwest grabbed me, a Portland job fell into place, and I decided it’s time to stop, to stay.

So, on January 2nd, I start my new job — 30 hours per week, leaving ample time to pursue my writing, and with medical benefits — as assistant to the Columbia District superintendent for the Oregon-Idaho Conference of the United Methodist Church, a progressive religious community that is, I believe, on the cusp of exciting change. (Yvi, you might not remember, but you’re the one who suggested to me, so many months ago, over lunch, a Conference job!) I’ll be renting a lovely room in my cousin Alexis’s family’s home — nestled among stunning pines and holly bushes bigger than you’ve ever seen — and joining the Alexis-Nathan-Finnegan-Wilder household as full-time Auntie Sara. 

Who ever could’ve imagined, on that cold, miserable moving day last January… 

On my travels, in a little indie bookstore in Ann Arbor, I found two beautiful art prints made, I didn’t know at the time, by a painter in Portland, OR. This is what they say:

“Everything changes. Nothing is Lost.”

and

“It is well with my soul.”

Yes. And amen.

Sending so much love and peace and gratitude. I promise to be in touch again soon.

Xoxox,
Sara

2014 September 2 - Like a Gift (Lotsa Update)

Hello again.

Well, I've almost made it to the other side of treatment number four (by the other side, I mean resolution of the after/side effects of the chemo) and I think I can see a crack of light at the end of the chemo sequence tunnel. I'm afraid to think too far past the last two treatments (9/16 & 10/7) but at least that will be the end of some part of this whole cancer thing, right? (Seriously, three full months trapped in my apartment with it and the reality of that word - cancer - is still actively blowing my mind. Anyway...)

The aftermath of this treatment hasn't been as bad as the others. I'm just a week out and, though I haven't been able to do much, I have made it outside a few times to bask in this amazing, cool weather. I'm still dealing with the regular, lingering digestive issues, but am ridiculously grateful that I didn't experience the crushing depression you all saw so clearly in the updates I wrote after treatment number three. Sarah Whitt, who came from Philly to stay with me for this treatment, looked at me on Friday night, after we'd spent time both morning and evening just sitting quietly on the front porch, and said, "This day feels like a gift." And she was right - a day so close to treatment that saw me outside and feeling relatively ok was most certainly a gift.

The first time I went out socially after my diagnosis, I felt very delicate. I experienced this sense of being in regular life - near the people I know and in a usual situation - but separate from it too. I was right there with everyone and they could see me and I could see them. We could interact, but I was different; I imagined myself inside a bubble.

With only two ("only" is a sickening sort of word to use here, but it gets the point across) treatments left and my external physical wounds moving toward healing, I'm feeling this sense of suspended animation, or rather that I can see a potential end to it - that I may actually get out of the suspended part and be animate again, that normal life is in the offing. But, I'm not sure what normal life looks like anymore. What I imagine is like a cartoon world where colors are bright and things move fast; there are birds and breezes and smiles and it's all quite dizzying. Actually, remember Glenda's bubble in the old Wizard of Oz movie? That's me in there - skinny, tired-eyed, bald - floating through this distorted Munchkin-Land of color that makes up the "normal" I can't quite imagine anymore. It's kind of scary. I want to be out of the bubble, but "out of the bubble" is now an unknown land.

I guess if I think hard enough about it, we all walk through an unknown land every day though, right? Even if this particular not-knowing does feel awfully looming? (Oh, I could spin on this for a while, but I won't!)

There is one seriously important thing you guys have shown me though. I'm not in this alone and for that - bubble or no bubble, known or unknown - my gratitude is (humor me!) as big and sparkly as the Emerald City.

Xo,

Sara

2014 August 24 - This Wistful Okie Self (Lotsa Update)

Hey there,

Well, it's been a pretty good week! I worked from home and got a lot of catching up done. On Thursday, I even made it to part of the College's fall kick-off meeting. It was such a relief to see so many kind, genuinely caring coworkers/friends. I was thrilled to be there.

Fridays have become a source of major anxiety as that's the day I go for bloodwork. (I've always been more antsy than most people when it comes to things like this, but all the trouble I've had with the ports has not helped.) Things went smoothly this week and it looks like both the incision from the old port (that had to be removed) and the new port are healing up ok. The best part was the reward afterward...

You all know that I grew up in Oklahoma, mostly in the suburbs, but my best childhood friend, Amber, lived more rurally and when we were about 12 (I think?), Amber got a horse. I was never a very confident rider, but something about all those days of riding the horse, sitting around while Amber did all the horse-care things, playing Little House on the Prairie, stuck with me because, a couple of years ago, I was writing and stumbled into all of these memories of life as a country girl. I woke this wistful Okie self. Before my diagnosis, when I thought I was having a surgery with a 4-week recovery time, I was texting with my brother, Jason, and said, "When this is all over, I am so going horseback riding." During my convalescence, I've been thinking more and more about that and craving just to be around some horses. Well, what did Shawnessey do? She found an equine therapy center in Wildwood that said we were welcome to visit. So, after my bloodwork on Friday, we went for a drive and spent a couple of hours hanging out with Florian and Magic and Brady and Hero (a picture is in the Lotsa site's photo gallery). I'm not near being able to ride, but we petted and brushed, and talked to them. It wasn't like a movie, where everything changed the moment my visit-a-horse fantasy [came true], but I do think I'll go back. After the horses were returned to their pastures, [Shawnessey and I] found a shady spot and sat for a while watching an empty, sprawling field and listening to the buzzing of the bugs in the trees.

The Saturday after my last treatment, I was so miserable. You know that sort of visceral, child-like place you get to when you've cried too much, and you just start saying things that come from a place you didn't know existed? Well, I was there and what I said to my Auntie Meg was, "I just keep thinking I want to go home, but I am already home. It doesn't make sense." It was seriously distressing that there was this call from some deep place and I couldn't understand it. Sitting under that tree, with that pasture stretching out in front of me and the heat and the trees and the bug noises, I had the feeling that this is home. Maybe this is what I'd been longing for in that terrible moment almost two weeks before. But, what is the this? Is it the actual landscape of my childhood - big green fields with horses nearby? Or something that the childhood landscape represents - perhaps a time when it still seemed like adulthood would bring freedom, when growing up meant realizing a dream? Maybe the home I was looking for was actually just hope for something better.

I guess all of this comes back to the first question that presented itself in flashing neon when I realized that treating cancer had taken over my life: all else aside, who am I and how do I choose to go on? That, I think, is where the hope comes in. It's sort of impossible to go on without it.

In the last few days, I've felt more acutely how the world keeps moving, moving, moving even when I feel like all my strength gets sucked up just trying to stand still and be.

There is a jumble of other things I could say, but for tonight this is enough. The takeaway: horses and lunches with friends and small revelations are all reasons to keep on keepin' on. And then there is you. Thank you thank you thank you for being here to listen and help and send good vibes and pray. It matters.

More soon...

Love,

Sara

PS. Thank you to everyone who tried to help find Elgin a new foster home! In the end, she is going to stay put with the family she already knows and loves.

2014 August 16 - As True as the Pain (Lotsa Update)

Hey there,

I understand that maybe my last post had some people a little worried. I'm here to let you know that as true as the pain in that post was, it's just as true that this week has been pretty ok. And ok is ok.

By Monday, my mental state was quite a bit better and on Wednesday evening, I felt physically well enough to get myself out of the house for a little trip to Target. Later in the week, I was out and about for doctor appointments and small errands, and even made it to UMSL for a couple of hours to meet with Jean and a few coworkers. Today saw an old-style (meaning pre-cancer-Sara) brunch with "the gals" at Home (in Maplewood - you should go there!), followed by a visit from Angela and Leeli. (Berries and brownies and pastries, oh my!)

While the week had all those good spots, I've also been blown away by tiredness. Like, seriously, I can't get up the gumption to take out the garbage? Nope. (Don't worry, I plan to ask for some help tomorrow. It's gotta go out.) Really, getting in bed at 5pm (even though I won't be able to actually sleep till after midnight)? Yep. I overdid it a bit on errands and aggravated all the healing-in-progress with the old port site and the new one. It's been two weeks since those surgeries and there is still occasional bleeding, which is stressing me out. Who doesn't want to have to go back to the hospital/doctor for these ports again? This girl. Ugh.

Man, I didn't mean for this to turn into another downer update! This is all just really hard and that's the honest-to-goodness truth. When I have the mental capacity, I do try to look for the good parts and appreciate them, to see the bright spots. Brownies and milk, hearing Finn and Nate laugh and play in the background while I'm talking on the phone to Alexis, walking into the Touhill, sitting under a tree for hours at Fozzie's. Figuring out how to manage each day is the game right now and I guess those bright spots make me think I'm figuring it out ok.

Are you interested in some deep-thoughts rambling? During an email exchange earlier in the week, a friend asked me, "So, what does the aftermath of chemo feel like? I've never talked to somebody who's done it." I haven't responded, so he probably thinks I'm ignoring the email, but really, the question flummoxed me and has been floating around in my head for days. What does it feel like? I'm not going to answer here because, frankly, you guys got a good taste of what it feels like for me in that last post. It feels like the end of everything good. But, as I've thought about that question all week, what I've come to is this: the intensity of the experience of "aftermath" slips away slowly, shifts into these kind of shadow memories, and then I put them away because I'm gonna have to go through it again, and how could I if everything stayed fresh? So, maybe the important part of what thinking about that question brought up for me is what the wise people talk about - living in the moment. Aftermath of chemo moments suck. Like, really suck a lot. But once they're slipping away, maybe the point is to be in the moments that suck less, and then even less, and then eventually move to the ones that are ok, and then kind of good, and maybe eventually (heavens, please) there will be some that make it closer to the joy side of the spectrum? So, friend-who-asked-the-question, when I see you next, maybe I'll try to describe the physicality of what it feels like. If I were you, I'd be curious too. But, in the end what your question opened up for me is a way to remember that the aftermath is a present-tense that has passed. For now, I'll just be here in this moment, in my bed, watching the Roku logo bounce around my tv screen, worrying about my dog and my stitches and why I want to eat pot roast so bad. I'll let the aftermath be a shadow while I sit in whatever today happens to be. It's all we can do, right?

Thanks for reading and for caring and, as always, for being you.

Still just appreciating all the genuine love and support...

Yours,

Sara

Ps - More about my beloved canine whose happiness-management just seems like too much for me to handle as I go through this treatment. As I mentioned before, Elgin has been staying with very generous friends in Tulsa and I need to find her a new situation in Tulsa, St. Louis, or somewhere in between. She is 8 years old, weighs about 25 pounds, and is a terrier mix. She has lived with cats, though if she moved in with some again, would need help re-learning not to chase them. She occasionally has doggy-friends, but can have a hard time meeting new dogs. She has a hard time getting comfortable with new people too, but once you're in, you're in and she'll love you forever. (She and I have that in common, I think.) I would not feel comfortable having her around small children. If she is afraid and wants some space, she can aptly warn an adult who is paying attention, but a little one might not get the message. If you know of someone who might want to foster my darling for a couple of months, drop me a line. And again, thank you. Xoxo.

2014 August 11 - It's a Metaphor (Lotsa Update)

Hello again,

If you didn't already know, recovering from a chemo treatment - speaking delicately - stinks. And this last week has been particularly rough. There is a place you can go where you just can't imagine that anything will ever be good again. Goodness or rightness or even okay-ness are unfathomable; I found myself in that place quite a lot this round - both physically and mentally. (Does this remind anyone else of the dementors from HP?) My Aunt Mia was here with me until Saturday and did her best to keep me steady, which sometimes meant just petting me and cooing while I cried. After she went home, it was my Aunt Meg hanging on the phone with me while I did the same. A bunch of "no good, very bad" days.

I question why I'm writing so much and so clearly about this here. In this venue, shouldn't I just get to the point, give a quick update, then get positive? I don't know... Should I? I feel as though, if I were in real eye-to-eye conversation with you, I'd tell you the truth, so why not here? This treatment has me holed up and broken, but as much as people like to label me "sweet" and "nice," it's in my soul to be real. Maybe I'm too raw still and will revise some of this away. Maybe not? I wonder what you'd prefer. How much is the right amount of sharing? (You don't have to answer that!)

Well, anyway, I felt like I was knocked further down by this last treatment even than the ones before, but may be starting to see the upswing coming. As evidence, I can tell you that I cried only a little today and asked Jen T to drop off some dinner (which, of course, she happily did!). I paid some bills and did some work online and reveled in a lovely email from a friend currently on a road trip (one of my very favorite spring-summer-fall pass times). The email described the scenery in a way a writer could love and even included a frosty mug of root beer at a roadside stand. It made me nostalgic and happy in equal measure. Happy in the same way I was happy to get a smiling selfie from my brother, Jason, and his wife, Susan, who are vacationing at the beach this week. It's just amazing to imagine that life - road tripping, summer-vacationing, kids-dripping-ice-cream-cones life - is going on in a circle somewhere close to this one I'm trapped in for now. The nostalgia is for my own past selfies and road trips as much as for future ones that seem, right now, so hard to envision.

After all of this maybe-I-should-edit-it rambling, what do I really have to say to you today? Enjoy yourselves if you can, folks. I need to know good stuff is happening out there.

My, that might all be too maudlin, so I'll end with this...

I woke this morning to a text from my big brother. It came in at 5:37AM and began with an iPhone photo of the sun coming up over the ocean. It said, "Sara... The sun is rising. :-)." When I woke up several hours later and gave a simple reply, Jason continued, "Do you get it? It's a metaphor. :-p" I love that guy.

And you too. Thanks for being here and for being you.

Xo,

Sara

PS. On a totally logistical note, I am looking for a temporary foster home for my dog, Elgin. It would be best for me to find a good spot for her to stay until I'm through with these treatments (mid-October). I think she would do best in a one-dog household with no small children. (She has had doggie-friends before, but they are hard to come by; she is used to living with a feisty cat.) Elgin is currently in Tulsa and could be fostered either there or in St. Louis (or in between, I suppose?). Drop me an email if you would like to discuss in more detail.